Local organisations that may be able to offer you support:
Is a parent run support group based around Southwest London and Surrey dedicated to giving support to families who have children and young people with Down's syndrome.
Provides free, confidential, impartial advice on welfare benefits, debt, housing, employment, consumer, relationship & family issues, immigration and other topics.
For anyone who has a disability of any kind and for all ages. Most staff, volunteers, and trustees have personal experience of living with disabilities.
Based in Chiswick, they work with young people from a broad spectrum. The youth project is inclusive, and we pride ourselves on that, as we work with young people from all different backgrounds.
HAY is a vibrant, bustling and supportive youth and community charity in the heart of the London Borough of Hounslow. Our mission is to create opportunities where children and young people have fun, learn new skills and make great friends.
Monthly meet-up with other parents of young people (0 to 25 years) with special educational needs and disabilities (SEND), discussing issues such as health, education and employment.
An initiative based on the belief that all children and young people are capable of learning and thriving. Hounslow's Promise believes that the whole community shares a responsibility to help young people succeed.
A volunteer organisation which provides support, information, advice service for Iranian and other Persian-speaking disabled people, their carers and families.
Provides information on motor neurone disease (MND) and Kennedy's disease, and what to do next if you have recently been diagnosed with either condition.
Commissioned by partner organisations to deliver a broad range of music therapy services for children and families who face significant challenges in their lives.
Family Matters is a parents support service in Richmond and Hounslow. Advisors provide practical support, advice and information to families with children with disabilities or additional needs who are feeling under pressure or who are experiencing difficulties.
Provides support to families from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care. There are lots of online groups as well this page has the details of some recommended by parents.
An independent charity that provides activities and therapies for children with disabilities and additional needs. They also provide therapies, courses and information for their families.
